Quality of life in children with end-stage renal disease

Summary:

Knowledge about children with end-stage renal disease (ESRD) is scattered, and longitudinal studies are scarce. In 2007 the European Society of Pediatric Nephrology established an European registry collecting data on these patients on the basis of national sub-registries to gather an unique cohort of patients for further research.

However, an absence of an official national Slovak registry was inhibiting the cooperation with the ESPN. The main aim of this project is to establish a new nationwide registry collecting the data on ESRD children to evaluate the occurrence of ESRD in children in Slovakia and to focus on and to publish about their functional status and quality of life.